...three daze, actually. *sighs*
The steroids I was given Friday kept me up Friday night. Saturday I did my mile and some work in the yards in the morning, but soon after lunch, I was zoning out. A short nap helped, but not much. I'm afraid that I fell asleep during our movie date after dinner... Though I don't think Kevin was far behind; the debacle Friday morning didn't 'freak him out,' but I know he had a couple starts during that time.
Sunday we were mostly just exhausted. When I regained consciousness that day, Kevin had finished staining the new window frame in the game room. He did a beautiful job, though we doubt anyone but he and I will notice it...well, maybe a couple people. *winks*
Monday morning I did the interview for SSDI. Aside from their calling a half hour later than they said they would, it went relatively smoothly. We need to get a couple things copied, notarized, signed and to their office; they're as good as done.
Sounds like I'll be approved, but having just seen the trailers for "Sicko," I'm not taking anything for granted. We are, after all, the Black Hole for All Agency Screw-ups *heavy sigh*
Did another mile on Monday afternoon; I'm doing a 20-min mile. Can't calibrate the incline up the curve, but I think I'm doing pretty close to what I was doing in Rehab. Have spoken with Nurse Nancy and told her that Dr. A will set a standing order, so that I can be in Pulmonary Rehab whenever I feel like I can get there. Thanks for checking in, NN, and again my regards to everyone there.
Today I did another mile, took a looooooong hot shower and thought about the blog. I've started a topic list, which I clearly don't need to tap today *thwaps self* If there is anything you'd like to add to that list, let us know. My right lung aches differently daily, each day feeling a bit better. The incisions are still distracting me waaaay too often - although now the 'healing itch' is the distraction from one of them *grins and scratches*
Had a long and healing massage this afternoon. dd has been coming here for my massages since the last surgery, but there's something special about being in her studio on her table. I'm still feeling the effects of that...
Sorry, Katie and everyone, for not being more clear that I'd had an allergic reaction to the Taxol on Friday; thanks, Nancy, for clearing that up. I remember taking castor oil as a child, though I don't recall my siblings having to take it, which means I didn't take it for long. Kevin also remembers it. And, no, I don't recall ever having had an allergic reaction then, but from what I understand, we're all susceptible to various allergies at all stages of our lives. I'll ask Mom if she remembers anything.
Thursday I'll meet with our lawyer to finish the next step in closing Uncle Shorty's estate.
It sounds like we'll be switching on Friday morning to a new chemotherapy drug called gemzar. If I'm not allergic, complete hair loss may not be an issue. I've put off cutting my Locks of Love donation another week. Will move the Mehndi Art instruction date, as well.
We're needing to deal some Inn things with regard to Gift Certificates that we've donated for silent auctions, etc. Two of them rose up this week and Kevin was ably to deal them gracefully. A sister Bed and Breakfast has agreed to honor any gift certs that someone might want to cash in. That will hopefully take care of the one, and the other was for a Weekend Family Gathering. Fortunately the latter hadn't sent in any reservation money, and there is still plenty of time for her to find another venue.
Dr. C says I'll need to stay in a controlled environ, so we're telling anyone who calls that we're booked. It's actually having the effect of making us seem pretty darned exclusive -- would you, perhaps, like to book a room for the Summer of '08??
Anyone, that is, beside the friends, family and former students who came from all kinds of unexpected and delightful haunts this past May. Something to do with there being a Blue Moon last month???
We have a long list of thanks-yous for foods, funs, well-wishes, base-touches, and not so random acts of kindnesses - just in this past month. Am not sure how best to deal with them *ponders something beside this brief mention*
I don't imagine there will be any news of note on our front before Friday. So I'll work on a not so noteworthy post for tomorrow...
Make nice!
5 comments:
I wrote a long and detailed response to your last post. I hit the "Publish Your Comment" button, and everything evaporated and left me with a generic error message. I really remember liking what I wrote. It was sort of like having an expectation, briefly, and having to immediately revise it. Nothing any of us has recently experienced, I'm sure.
I do remember one thing I wrote. In response to Diana's thoughts on gratitude:
I get a lot from the time we spend together. At times in my life you have made it clear that you were beside me, and that if I needed something you would do your best to help me. Mostly, we have all been there to tease out the meaning in our lives and to share it, between wise cracks and detours, the best we can. It's a pleasure spending time. Doesn't feel like much work.
BTW, I'm good for bacon and eggs and homefries breakfast if you get in the B & B pinch,or if you just want breakfast. I might need a little help with prep, but I'm used to getting up early.
I think, when things settle down, or even if they don't, we should put together some music and food and fill the air with good karma.
Love to all,
S.
Oh, the other thing I did was tease Seth. He called me Monday to nail down a Tuesday raquetball date and then called me about two hours later and left a message that he had thrown his back out.
I must be pretty damned good at raquetball to throw his back out before the match. Talk about anticipation!
S.
Kevin and Diana, peace and grace to you both on the journey. I'm Jonathan Haas' brother, David. When Jonathan shared your blog with me I was moved to reach out, from one survivor to another. Your recent posting took me back to a night (several years ago during my cancer) when my wife found me at 2 AM cleaning out the refridgerator -- I was on a prednisone high, and it was too early to go out for another run, so I was looking for some activity to burn off the rush of energy. Crazy. Diana, I hope you're staying on top of your doctors, and particularly in this case, I hope they are allowing you to "taper off" the steriods whenever you've come to the end of your treatment cycles; and allowing you to taper up at the start of the cycles. The "crash" can be so severe if it's not being tapered off gradually.
Good gardening, mile-long enjoyment, pure laughter, and holy companionship be yours this day and into the next! Peace, david jh
In a Vonnegut world,
What cool a wampeter this blog is, but I guess it takes a wampeter to create one!
At the very least, it is a good "kan-kan" (the instrument which brings one into the great karass) and it lets me plug into my karass (group of folks unwittingly doing stuff on a higher-level)
Nice words Sammy !
Happy boko-maru, to you all!
-Best,
Rodney
Beware the granfalloon.
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